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03/14/2019 - 3:30am

On national POLST maps published just two years ago, South Dakota was conspicuous in its absence of a POLST program.

03/14/2019 - 3:30am

On national POLST maps published just two years ago, South Dakota was conspicuous in its absence of a POLST program.

That has now changed. This week, the legislature enacted legislation establishing a MOST program.

03/13/2019 - 1:59pm

Alexandria Ocasio-Cortez, nonprofits, and ethicists are now publicly addressing questions about procreation in the age of climate change. Travis Rieder at the Johns Hopkins Berman Institute of Bioethics points out that this is not the first time a generation has questioned childbearing in the face of a potential existential threat

03/13/2019 - 1:05pm

by Roger Crisp Nearly all of us have been involved with the so-called ‘gig economy’ in some way or other, whether by calling an Uber or by ordering a pizza via Deliveroo. Indeed my elder daughter was a ‘Roo’ for a while (not long, I’m glad to say), so I have had some insight, albeit […]

03/13/2019 - 10:10am

Critics say they aren't drastic enough. The changes aim to bring more talent to WHO and improve coordination between its headquarters in Geneva, Switzerland, and six regional offices

03/13/2019 - 9:01am

Efforts to save the sperm of the deceased come with heartache and tough questions

03/13/2019 - 8:58am

Hospitals should require patients to give explicit informed consent before physicians are authorized to discuss life-and-death matters with them offsite via technology

03/13/2019 - 8:45am

The results suggest that a little praise can go a long way in helping doctors and nurses feel like their work has meaning, said Cynda Rushton, a researcher at the Berman Institute of Bioethics and School of Nursing at Johns Hopkins University in Baltimore

03/13/2019 - 8:13am

A panel discussion held this week at Harvard Law School with Professor Jennifer Prah Ruger about her new book, “Global Health Justice and Governance,” with Professor Michael Stein and Petrie-Flom Center Executive Director Carmel Shachar, provided a stimulating space for transdisciplinary discussion of critical justice imperatives in today’s world.

The challenges facing global health justice—from forced displacement, to climate change, to ever-changing technologies and evolving epidemiological profiles—are far too complex for one discipline to explain or resolve alone, which makes these kinds of discussions all the more essential.

What does a human rights perspective add to telling us what health inequalities (within and between countries) are inequities and injustices—as opposed to disparities?

First, the right to health is, as all rights are, shorthand for longer conversations about distributive justice.  The content of health rights requires, among other things, fair financing and democratically legitimate processes to define its contours in context, in line with normative principles of non-discrimination, and so on.

In turn, the idea of recognizing a right to health also implies health systems should be understood not as technical apparatuses but as fundamental social institutions in a democracy—which include structures of financing, “accountability for reasonableness” and participation by affected communities in priority-setting, and relationships of entitlement and accountability between patients and providers.

A right to health does not — cannot — mean “everything for everyone now.” But it does open space for the normative oversight role of courts in health systems. Indeed, an array of courts are now using innovative remedies and experimentalist regulation regarding health systems, pollution, food, and the like, to catalyze action from the political organs of government, in addition to enforcing individual entitlements.

Nevertheless, we see dysfunction in national political institutions, as well as the deepening economic integration, the growing influence of transnational actors, and sweeping privatization of health sectors (and development agendas) that impair the ability to realize health and other social rights in practice. Further, the human rights regime has not addressed the egregious global inequalities between countries adequately, including in health. And UN-based health institutions are increasingly controlled by private interests, which exacerbates the deficit in democratic decision-making in global health.

In short, global health justice cannot be defined by human rights law, or public health or philosophy, or any one field.

Ruger emphasized collaboration and shared health governance. I agree and would argue for experimentalist and networked governance that will enable curbing the influence of transnational actors, as well as changing the rules of trade and investment and the other shapers of the political economy of avoidable suffering.

 

For more about the Global Health Rights Project (GHRP), check out our website!

 

The post Global Health Justice and Governance: Challenges and Proposals appeared first on Bill of Health.

03/13/2019 - 5:59am

By Steve Phillips I have said this before (see post on 12/5/18), but since otherwise intelligent people continue to say that we should pursue human germline gene editing because it can be used as a means of eliminating the transmission of genetic diseases to future generations, I need to say it one more time. There …

Continue reading "Human germline gene editing is not a solution for genetic diseases"